Disability · Reg 1079049
CYSTIC FIBROSIS TRUST
Charity rating & review
80/100 Clarity Score · 3 stars · Charity Commission filings · How we score
Clarity score
Good
Is CYSTIC FIBROSIS TRUST a good charity?
CYSTIC FIBROSIS TRUST scores 80/100 (Good) on our Clarity Score, with 78% of spending going to charitable activities and accounts up to date. This reflects financial transparency and stewardship from Charity Commission filings — not the real-world impact of its programmes. See the full breakdown.
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Mission
CYSTIC FIBROSIS TRUST is a registered charity (no. 1079049) working in disability across the United Kingdom. Its latest Charity Commission filing directs 78% of spending to charitable activities, holding roughly 7 months of reserves, and files its annual accounts on time. Income has been growing over recent years. CharityCompare's Clarity Score rates the organisation only from public Charity Commission accounts — accountability, financial health, efficiency and community support — not the quality or impact of its programmes.
In short: CYSTIC FIBROSIS TRUST scores 80 out of 100 (3 stars). 78% average program spend (3-year average). Filings are up to date with no major concerns.
Overview
CYSTIC FIBROSIS TRUST has a Clarity Score of 80 out of 100 on CharityCompare (3 stars, Good). Charity Commission registration number 1079049. Status: Registered. Primary cause area: Disability. Latest accounts year 2021: total income £14m, with 78% of expenditure on charitable activities. Accounts filing: up to date. Reserves: approximately 7 months of operating costs. No major red flags from our filing review. Scores are independent and based on official filings — not a donation recommendation.
Data from Charity Commission register, last updated .
Overall score
80/100
3★ · Good
Cause spend
78%
3-yr avg · charitable activities
Accountability
100/100
Finance beacon
Income
£14m
Latest year 2021
Reserves
7 mo
Months of running costs
Accounts filing
On time
Charity Commission
£4.5 raised per £1 fundraising (3-yr avg) · 25% overhead · Website on register · Confidence: high
How CYSTIC FIBROSIS TRUST compares
Clarity Score benchmarked against similar UK charities — higher is better.
Ranks higher than 56% of 1,022 charities in its income band.
Ranks higher than 55% of 742 charities in this cause.
Data & confidence
- Source
- Charity Commission (E&W)
- Accounts year
- 2021
- Filing date
- 2026-06-24 00:00:00.0000000
- Profile reviewed
- 2026-06-25
High confidence — complete filing data
Scores reflect the latest annual accounts on the register. Impact, leadership, and culture beacons require information beyond public filings.
Contains public sector information licensed under the Open Government Licence v3.0. Source: Charity Commission for England and Wales . Open Government Licence v3.0 .
Beacon report
Detailed accountability and finance metrics from Charity Commission filings — structured for transparency in our four-beacon report.
Accountability & Transparency
Baseline trust from filing discipline, board oversight, and declared governance policies.
100/100
| Metric | Score | Value |
|---|---|---|
| Filing history (5 years) 100% on-time over five years = 15 pts · one late filing = 5 pts · two or more = 0 pts. | 100% | 15/15 pts |
| Trustee oversight Three or more trustees on the register = 15 pts · one or two = 0 pts (governance red flag). | 100% | 12 trustees · 15/15 pts |
| Declared policies Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return. | 100% | 10/10 pts |
Financial Health
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
50/100
| Metric | Score | Value |
|---|---|---|
| Reserves (months of cash) 3–24 months = 15 pts · 1–3 months = 7 pts · under 1 month or over 3 years (hoarding) = 0 pts. | 100% | 7 months · 15/15 pts |
| Income stability / growth Positive or stable three-year revenue trend = 10 pts · sustained decline = 0 pts. | 0% | 0/10 pts · 3-year average |
| Liabilities to assets Low debt (< 30% liabilities to assets) = 5 pts · high debt = 0 pts. | 0% | 58% · 0/5 pts |
Financial Efficiency
How efficiently funds reach the cause — program spend and fundraising cost ratios.
75/100
| Metric | Score | Value |
|---|---|---|
| Program expense ratio ≥ 75% on charitable activities = 10 pts · 60–75% = 5 pts · below 60% = 0 pts. | 100% | 78% · 10/10 pts (3-year average) |
| Fundraising efficiency Spends ≤ £0.20 to raise £1 = 10 pts · £0.21–£0.35 = 5 pts · above £0.35 = 0 pts (fundraising cost ÷ income). | 50% | 22p per £1 income · 5/10 pts (3-year average) |
Community Support
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
100/100
| Metric | Score | Value |
|---|---|---|
| Volunteer-to-staff ratio More volunteers than paid staff = 10 pts · equal mix = 5 pts · no volunteers = 0 pts. | 100% | 162 volunteers / 133 staff · 10/10 pts |
Clarity Score
80/100 total · Good · 3 of 4 stars
Four pillars (40 + 30 + 20 + 10 points) from Charity Commission filings — see methodology for full weightings.
Accountability & Transparency
Baseline trust from filing discipline, board oversight, and declared governance policies.
100/100
Financial Health
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
50/100
Financial Efficiency
How efficiently funds reach the cause — program spend and fundraising cost ratios.
75/100
Community Support
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
100/100
Revenue & expenses
Latest filed year 2021 · Source: Charity Commission annual accounts
| Category | Amount | % of spend |
|---|---|---|
| Total income | £14m | — |
| Total expenditure | £14m | — |
| Charitable activities | £10m | 73% |
| Fundraising | £3.7m | 27% |
| Governance & admin | £279k | 2% |
Where the money goes
Latest accounts (2021) · £14m spent
- Charitable activities73% · £10m
- Fundraising27% · £3.7m
- Governance2% · £279k
Trust indicators
Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported.
-
Accounts filed on time
up to date · last filing 2026-06-24 00:00:00.0000000
-
Trustee board size (3–12)
12 trustees on the Charity Commission register
-
Workforce on register
133 employees · 162 volunteers (1:1 volunteer-to-staff)
Fundraising Regulator
Status not yet checked
Separate from our financial scores — shows whether the charity follows the Code of Fundraising Practice.
Check Fundraising Regulator →Official register
Reg 1079049
Full trustee list, accounts, and regulatory history on the Charity Commission.
View on Charity Commission →Trustees & officers
- Sean Collins since 2017
- Richard Hunt CBE Chair · since 2018
- Joanna Barrett since 2019
- Michelle Shore since 2019
- Martin Walshaw since 2021
- Sophie Pierce since 2021
- Sonya Trivedy since 2021
- Neil Priscott since 2023
- Jane Wainwright since 2023
- Dr Maya Desai since 2024
- Daniel Beever since 2025
- Anthony Hunter since 2025
How we score charities +
The Clarity Score is a 100-point rating from UK Charity Commission data. Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10). A statutory inquiry sets the score to 0 automatically.
Accountability & Transparency
Scored from filings
40 points — filing history (15), trustee oversight (15), declared policies (10).
Financial Health
Scored from filings
30 points — reserves (15), income stability (10), liabilities to assets (5).
Financial Efficiency
Scored from filings
20 points — program expense ratio (10), fundraising efficiency (10). Kept at 20% to avoid punishing legitimate infrastructure costs.
Community Support
Scored from filings
10 points — volunteer-to-staff ratio from Charity Commission workforce data.
Overall score
Sum of all pillar points. Translated to stars: 90–100 Exceptional (4★), 75–89 Good (3★), 60–74 Needs improvement (2★), below 60 Poor (1★).
Five-year trends
- Income
- Spending
- Cause spend
Values in £ thousands · Source: Charity Commission accounts
Key facts
- Overall score
- 80/100 (3★)
- Income
- £14m
- Cause spend
- 78% of expenditure
- Reg number
- 1079049
- Scope
- UK-wide
- Reserves
- 7 months
- Trustees
- 12
- Accounts year
- 2021
- Filing
- up to date
Compare & explore
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Top-rated peers by CharityCompare score
- Felix Charity 100/100 · £72m
- ELIM FOURSQUARE GOSPEL ALLIANCE 100/100 · £66m
- PARKINSON'S DISEASE SOCIETY OF THE UNITED KINGDOM 100/100 · £36m
- MOVEMBER EUROPE 100/100 · £27m
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Frequently asked questions
Common questions about CYSTIC FIBROSIS TRUST's rating, finances, and Charity Commission status.
What is CYSTIC FIBROSIS TRUST's charity rating? +
CYSTIC FIBROSIS TRUST scores 80 out of 100 on CharityCompare (3 stars — Good). The Clarity Score V1 sums four pillars from Charity Commission filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10).
Is CYSTIC FIBROSIS TRUST a good charity to donate to? +
CYSTIC FIBROSIS TRUST scores 80 out of 100 (3 stars — Good) on CharityCompare's Clarity Score, our independent read of its Charity Commission filings. Around 78% of its spending goes to charitable activities and its accounts are up to date. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate.
Is CYSTIC FIBROSIS TRUST a legitimate UK charity? +
Yes — CYSTIC FIBROSIS TRUST is registered with the Charity Commission for England and Wales under registration number 1079049. You can verify the entry on the official register.
What is CYSTIC FIBROSIS TRUST's Charity Commission registration number? +
CYSTIC FIBROSIS TRUST's registration number is 1079049. Official register: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1079049
How much income does CYSTIC FIBROSIS TRUST receive? +
CYSTIC FIBROSIS TRUST reported £14m total income in its 2021 accounts, based on Charity Commission filings. Five-year trend: growing.
What percentage of CYSTIC FIBROSIS TRUST's spending goes to charitable activities? +
Approximately 78% of total expenditure went to charitable activities in the latest filed year. Fundraising was 22% and combined overhead (fundraising plus governance) was 25%.
Are CYSTIC FIBROSIS TRUST's accounts up to date? +
Filing status: up to date (last filing 2026-06-24 00:00:00.0000000). CharityCompare flags late or missing accounts separately from the financial score.
Where is CYSTIC FIBROSIS TRUST based? +
CYSTIC FIBROSIS TRUST is listed at London · UK-wide · EC3A 5EB and operates UK-wide, focused on disability.
How does CharityCompare score CYSTIC FIBROSIS TRUST? +
We analyse Charity Commission annual accounts using three-year averages for program expense, fundraising efficiency, and overhead; working capital from reserves vs average expenditure; liabilities-to-assets from the latest balance sheet when available. Impact, leadership, and culture beacons are not yet assessed from public data alone. See our methodology for weights and thresholds.
Does CharityCompare recommend donating to CYSTIC FIBROSIS TRUST? +
No. CharityCompare provides independent scores and facts from official filings. We do not tell you where to donate or earn commission from charities.
How can I compare CYSTIC FIBROSIS TRUST with other charities? +
Use our free compare tool to put CYSTIC FIBROSIS TRUST side-by-side with other UK charities on scores, finances, and filing status.