Disability · Reg 1100394
EPILEPSY RESEARCH INSTITUTE UK
Charity rating & review
75/100 Clarity Score · 3 stars · Charity Commission filings · How we score
Clarity score
Good
Is EPILEPSY RESEARCH INSTITUTE UK a good charity?
EPILEPSY RESEARCH INSTITUTE UK scores 75/100 (Good) on our Clarity Score, with 93% of spending going to charitable activities and accounts late. This reflects financial transparency and stewardship from Charity Commission filings — not the real-world impact of its programmes. See the full breakdown.
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Mission
EPILEPSY RESEARCH INSTITUTE UK is a registered charity (no. 1100394) working in disability across the United Kingdom. Its latest Charity Commission filing directs 93% of spending to charitable activities, holding roughly 13 months of reserves, though its recent accounts were filed late. Reported income has been declining over recent years. CharityCompare's Clarity Score rates the organisation only from public Charity Commission accounts — accountability, financial health, efficiency and community support — not the quality or impact of its programmes.
In short: EPILEPSY RESEARCH INSTITUTE UK scores 75 out of 100 (3 stars). 93% average program spend (3-year average). Review the pillar breakdown below.
Overview
EPILEPSY RESEARCH INSTITUTE UK has a Clarity Score of 75 out of 100 on CharityCompare (3 stars, Good). Charity Commission registration number 1100394. Status: Registered. Primary cause area: Disability. Latest accounts year 2021: total income £1.2m, with 93% of expenditure on charitable activities. Accounts filing: late. Reserves: approximately 13 months of operating costs. 2 filing concern(s) noted on this profile. Scores are independent and based on official filings — not a donation recommendation.
Data from Charity Commission register, last updated .
Overall score
75/100
3★ · Good
Cause spend
93%
3-yr avg · charitable activities
Accountability
75/100
Finance beacon
Income
£1.2m
Latest year 2021
Reserves
13 mo
Months of running costs
Accounts filing
Late
Check register
£14.4 raised per £1 fundraising (3-yr avg) · 11% overhead · Website on register · Confidence: medium
How EPILEPSY RESEARCH INSTITUTE UK compares
Clarity Score benchmarked against similar UK charities — higher is better.
Ranks higher than 43% of 3,014 charities in its income band.
Ranks higher than 39% of 742 charities in this cause.
Data & confidence
- Source
- Charity Commission (E&W)
- Accounts year
- 2021
- Filing date
- 2026-06-24 00:00:00.0000000
- Profile reviewed
- 2026-06-25
Medium confidence — some data missing or late
Scores reflect the latest annual accounts on the register. Impact, leadership, and culture beacons require information beyond public filings.
Contains public sector information licensed under the Open Government Licence v3.0. Source: Charity Commission for England and Wales . Open Government Licence v3.0 .
Beacon report
Detailed accountability and finance metrics from Charity Commission filings — structured for transparency in our four-beacon report.
Accountability & Transparency
Baseline trust from filing discipline, board oversight, and declared governance policies.
75/100
| Metric | Score | Value |
|---|---|---|
| Filing history (5 years) 100% on-time over five years = 15 pts · one late filing = 5 pts · two or more = 0 pts. | 33% | 5/15 pts |
| Trustee oversight Three or more trustees on the register = 15 pts · one or two = 0 pts (governance red flag). | 100% | 12 trustees · 15/15 pts |
| Declared policies Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return. | 100% | 10/10 pts |
Financial Health
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
50/100
| Metric | Score | Value |
|---|---|---|
| Reserves (months of cash) 3–24 months = 15 pts · 1–3 months = 7 pts · under 1 month or over 3 years (hoarding) = 0 pts. | 100% | 13 months · 15/15 pts |
| Income stability / growth Positive or stable three-year revenue trend = 10 pts · sustained decline = 0 pts. | 0% | 0/10 pts · 3-year average |
| Liabilities to assets Low debt (< 30% liabilities to assets) = 5 pts · high debt = 0 pts. | 0% | 67% · 0/5 pts |
Financial Efficiency
How efficiently funds reach the cause — program spend and fundraising cost ratios.
100/100
| Metric | Score | Value |
|---|---|---|
| Program expense ratio ≥ 75% on charitable activities = 10 pts · 60–75% = 5 pts · below 60% = 0 pts. | 100% | 93% · 10/10 pts (3-year average) |
| Fundraising efficiency Spends ≤ £0.20 to raise £1 = 10 pts · £0.21–£0.35 = 5 pts · above £0.35 = 0 pts (fundraising cost ÷ income). | 100% | 9p per £1 income · 10/10 pts (3-year average) |
Community Support
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
100/100
| Metric | Score | Value |
|---|---|---|
| Volunteer-to-staff ratio More volunteers than paid staff = 10 pts · equal mix = 5 pts · no volunteers = 0 pts. | 100% | 42 volunteers / 14 staff · 10/10 pts |
Clarity Score
75/100 total · Good · 3 of 4 stars
Four pillars (40 + 30 + 20 + 10 points) from Charity Commission filings — see methodology for full weightings.
Accountability & Transparency
Baseline trust from filing discipline, board oversight, and declared governance policies.
75/100
Financial Health
Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.
50/100
Financial Efficiency
How efficiently funds reach the cause — program spend and fundraising cost ratios.
100/100
Community Support
Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.
100/100
Revenue & expenses
Latest filed year 2021 · Source: Charity Commission annual accounts
| Category | Amount | % of spend |
|---|---|---|
| Total income | £1.2m | — |
| Total expenditure | £2.0m | — |
| Charitable activities | £1.8m | 92% |
| Fundraising | £159k | 8% |
Where the money goes
Latest accounts (2021) · £2.0m spent
- Charitable activities92% · £1.8m
- Fundraising8% · £159k
Trust indicators
Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported.
-
Accounts filed on time
Filing status: late
-
Trustee board size (3–12)
12 trustees on the Charity Commission register
-
Workforce on register
14 employees · 42 volunteers (3:1 volunteer-to-staff)
Fundraising Regulator
Status not yet checked
Separate from our financial scores — shows whether the charity follows the Code of Fundraising Practice.
Check Fundraising Regulator →Official register
Reg 1100394
Full trustee list, accounts, and regulatory history on the Charity Commission.
View on Charity Commission →Trustees & officers
- Professor Matthew Walker since 2011
- Professor Mark Richardson since 2013
- Professor Michael Alan Cousin since 2020
- Professor Nicholas John Lench since 2021
- Professor Martin John Elliott since 2022
- Professor Anthony Marson since 2023
- Rebekah Smith since 2023
- Lesslie Anne Young since 2023
- Juliet Kate Solomon since 2023
- Simon Lodge since 2024
- Anna Louise Prideaux since 2025
- Jane Elizabeth Cullinan Beaven since 2025
How we score charities +
The Clarity Score is a 100-point rating from UK Charity Commission data. Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10). A statutory inquiry sets the score to 0 automatically.
Accountability & Transparency
Scored from filings
40 points — filing history (15), trustee oversight (15), declared policies (10).
Financial Health
Scored from filings
30 points — reserves (15), income stability (10), liabilities to assets (5).
Financial Efficiency
Scored from filings
20 points — program expense ratio (10), fundraising efficiency (10). Kept at 20% to avoid punishing legitimate infrastructure costs.
Community Support
Scored from filings
10 points — volunteer-to-staff ratio from Charity Commission workforce data.
Overall score
Sum of all pillar points. Translated to stars: 90–100 Exceptional (4★), 75–89 Good (3★), 60–74 Needs improvement (2★), below 60 Poor (1★).
Five-year trends
- Income
- Spending
- Cause spend
Values in £ thousands · Source: Charity Commission accounts
Key facts
- Overall score
- 75/100 (3★)
- Income
- £1.2m
- Cause spend
- 93% of expenditure
- Reg number
- 1100394
- Scope
- UK-wide
- Reserves
- 13 months
- Trustees
- 12
- Accounts year
- 2021
- Filing
- late
Compare & explore
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Red flags
Frequently asked questions
Common questions about EPILEPSY RESEARCH INSTITUTE UK's rating, finances, and Charity Commission status.
What is EPILEPSY RESEARCH INSTITUTE UK's charity rating? +
EPILEPSY RESEARCH INSTITUTE UK scores 75 out of 100 on CharityCompare (3 stars — Good). The Clarity Score V1 sums four pillars from Charity Commission filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10).
Is EPILEPSY RESEARCH INSTITUTE UK a good charity to donate to? +
EPILEPSY RESEARCH INSTITUTE UK scores 75 out of 100 (3 stars — Good) on CharityCompare's Clarity Score, our independent read of its Charity Commission filings. Around 93% of its spending goes to charitable activities and its accounts are late. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate.
Is EPILEPSY RESEARCH INSTITUTE UK a legitimate UK charity? +
Yes — EPILEPSY RESEARCH INSTITUTE UK is registered with the Charity Commission for England and Wales under registration number 1100394. You can verify the entry on the official register.
What is EPILEPSY RESEARCH INSTITUTE UK's Charity Commission registration number? +
EPILEPSY RESEARCH INSTITUTE UK's registration number is 1100394. Official register: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1100394
How much income does EPILEPSY RESEARCH INSTITUTE UK receive? +
EPILEPSY RESEARCH INSTITUTE UK reported £1.2m total income in its 2021 accounts, based on Charity Commission filings. Five-year trend: declining.
What percentage of EPILEPSY RESEARCH INSTITUTE UK's spending goes to charitable activities? +
Approximately 93% of total expenditure went to charitable activities in the latest filed year. Fundraising was 7% and combined overhead (fundraising plus governance) was 11%.
Are EPILEPSY RESEARCH INSTITUTE UK's accounts up to date? +
Filing status: late (last filing 2026-06-24 00:00:00.0000000). CharityCompare flags late or missing accounts separately from the financial score.
Where is EPILEPSY RESEARCH INSTITUTE UK based? +
EPILEPSY RESEARCH INSTITUTE UK is listed at London · UK-wide · SE1 3GN and operates UK-wide, focused on disability.
How does CharityCompare score EPILEPSY RESEARCH INSTITUTE UK? +
We analyse Charity Commission annual accounts using three-year averages for program expense, fundraising efficiency, and overhead; working capital from reserves vs average expenditure; liabilities-to-assets from the latest balance sheet when available. Impact, leadership, and culture beacons are not yet assessed from public data alone. See our methodology for weights and thresholds.
Does CharityCompare recommend donating to EPILEPSY RESEARCH INSTITUTE UK? +
No. CharityCompare provides independent scores and facts from official filings. We do not tell you where to donate or earn commission from charities.
How can I compare EPILEPSY RESEARCH INSTITUTE UK with other charities? +
Use our free compare tool to put EPILEPSY RESEARCH INSTITUTE UK side-by-side with other UK charities on scores, finances, and filing status.