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THE DYSTONIA SOCIETY

Charity rating & review

100/100 Clarity Score · 4 stars · Charity Commission filings · How we score

Verified · Charity Commission data
100 /100

Clarity score

Exceptional

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Is THE DYSTONIA SOCIETY a good charity?

THE DYSTONIA SOCIETY scores 100/100 (Exceptional) on our Clarity Score, with 75% of spending going to charitable activities and accounts up to date. This reflects financial transparency and stewardship from Charity Commission filings — not the real-world impact of its programmes. See the full breakdown.

London · UK-wide · SE1 7TP Reg 1062595 Registered charity Official website Charity Commission register

Mission

THE DYSTONIA SOCIETY is a registered charity (no. 1062595) working in disability across the United Kingdom. Its latest Charity Commission filing directs 75% of spending to charitable activities, holding roughly 15 months of reserves, and files its annual accounts on time. CharityCompare's Clarity Score rates the organisation only from public Charity Commission accounts — accountability, financial health, efficiency and community support — not the quality or impact of its programmes.

In short: THE DYSTONIA SOCIETY scores 100 out of 100 (4 stars). 75% average program spend (3-year average). Review the pillar breakdown below.

Overview

THE DYSTONIA SOCIETY has a Clarity Score of 100 out of 100 on CharityCompare (4 stars, Exceptional). Charity Commission registration number 1062595. Status: Registered. Primary cause area: Disability. Latest accounts year 2021: total income £422k, with 75% of expenditure on charitable activities. Accounts filing: up to date. Reserves: approximately 15 months of operating costs. 1 filing concern(s) noted on this profile. Scores are independent and based on official filings — not a donation recommendation.

Data from Charity Commission register, last updated .

Overall score

100/100

4★ · Great

Cause spend

75%

3-yr avg · charitable activities

Accountability

100/100

Finance beacon

Income

£422k

Latest year 2021

Reserves

15 mo

Months of running costs

Accounts filing

On time

Charity Commission

£18.4 raised per £1 fundraising (3-yr avg) · 9% overhead · Website on register · Confidence: high

How THE DYSTONIA SOCIETY compares

Clarity Score benchmarked against similar UK charities — higher is better.

Income band (£100k–£500k)100 vs 77 avg

Ranks higher than 100% of 2,492 charities in its income band.

Disability charities100 vs 78 avg

Ranks higher than 100% of 742 charities in this cause.

Data & confidence

Source
Charity Commission (E&W)
Accounts year
2021
Filing date
2026-06-24 00:00:00.0000000
Profile reviewed
2026-06-25

High confidence — complete filing data

Scores reflect the latest annual accounts on the register. Impact, leadership, and culture beacons require information beyond public filings.

Contains public sector information licensed under the Open Government Licence v3.0. Source: Charity Commission for England and Wales . Open Government Licence v3.0 .

Beacon report

Detailed accountability and finance metrics from Charity Commission filings — structured for transparency in our four-beacon report.

Accountability & Transparency

Baseline trust from filing discipline, board oversight, and declared governance policies.

100/100

Accountability & Transparency metrics for THE DYSTONIA SOCIETY
Metric Score Value
Filing history (5 years)

100% on-time over five years = 15 pts · one late filing = 5 pts · two or more = 0 pts.

100% 15/15 pts
Trustee oversight

Three or more trustees on the register = 15 pts · one or two = 0 pts (governance red flag).

100% 10 trustees · 15/15 pts
Declared policies

Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return.

100% 10/10 pts

Financial Health

Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.

100/100

Financial Health metrics for THE DYSTONIA SOCIETY
Metric Score Value
Reserves (months of cash)

3–24 months = 15 pts · 1–3 months = 7 pts · under 1 month or over 3 years (hoarding) = 0 pts.

100% 15 months · 15/15 pts
Income stability / growth

Positive or stable three-year revenue trend = 10 pts · sustained decline = 0 pts.

100% 10/10 pts · 3-year average
Liabilities to assets

Low debt (< 30% liabilities to assets) = 5 pts · high debt = 0 pts.

100% 5% · 5/5 pts

Financial Efficiency

How efficiently funds reach the cause — program spend and fundraising cost ratios.

100/100

Financial Efficiency metrics for THE DYSTONIA SOCIETY
Metric Score Value
Program expense ratio

≥ 75% on charitable activities = 10 pts · 60–75% = 5 pts · below 60% = 0 pts.

100% 75% · 10/10 pts (3-year average)
Fundraising efficiency

Spends ≤ £0.20 to raise £1 = 10 pts · £0.21–£0.35 = 5 pts · above £0.35 = 0 pts (fundraising cost ÷ income).

100% 4p per £1 income · 10/10 pts (3-year average)

Community Support

Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.

100/100

Community Support metrics for THE DYSTONIA SOCIETY
Metric Score Value
Volunteer-to-staff ratio

More volunteers than paid staff = 10 pts · equal mix = 5 pts · no volunteers = 0 pts.

100% 25 volunteers / 5 staff · 10/10 pts

How we calculate beacon scores →

Clarity Score

100/100 total · Exceptional · 4 of 4 stars

Four pillars (40 + 30 + 20 + 10 points) from Charity Commission filings — see methodology for full weightings.

100/100
Accountability & Transparency
100/100
Financial Health
100/100
Financial Efficiency
100/100
Community Support

Accountability & Transparency

Baseline trust from filing discipline, board oversight, and declared governance policies.

100/100

Filing history (5 years)15/15 pts
Trustee oversight10 trustees · 15/15 pts
Declared policies10/10 pts

Financial Health

Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts.

100/100

Reserves (months of cash)15 months · 15/15 pts
Income stability / growth10/10 pts · 3-year average
Liabilities to assets5% · 5/5 pts

Financial Efficiency

How efficiently funds reach the cause — program spend and fundraising cost ratios.

100/100

Program expense ratio75% · 10/10 pts (3-year average)
Fundraising efficiency4p per £1 income · 10/10 pts (3-year average)

Community Support

Grassroots backing from Charity Commission workforce data — volunteers vs paid staff.

100/100

Volunteer-to-staff ratio25 volunteers / 5 staff · 10/10 pts

Revenue & expenses

Latest filed year 2021 · Source: Charity Commission annual accounts

THE DYSTONIA SOCIETY revenue and expenses for 2021
Category Amount % of spend
Total income £422k
Total expenditure £310k
0%On charitable activities

Where the money goes

Latest accounts (2021) · £310k spent

  • Other spending100%

Trust indicators

Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported.

  • Accounts filed on time

    up to date · last filing 2026-06-24 00:00:00.0000000

  • Trustee board size (3–12)

    10 trustees on the Charity Commission register

  • Workforce on register

    5 employees · 25 volunteers (5:1 volunteer-to-staff)

Fundraising Regulator

Status not yet checked

Separate from our financial scores — shows whether the charity follows the Code of Fundraising Practice.

Check Fundraising Regulator →

Official register

Reg 1062595

Full trustee list, accounts, and regulatory history on the Charity Commission.

View on Charity Commission →

Trustees & officers

  • Penny Ritchie-Calder since 2019
  • Timothy John Gannicliffe since 2019
  • Robert Harold William Semple since 2021
  • Dr Amit Batla since 2023
  • Emily Birden since 2023
  • Qamar Khan MBE since 2024
  • Ntonella Macerolla since 2023
  • Sophie Eleanor Norman since 2023
  • Fermanda Perez since 2023
  • Christopher Paul Southon since 2026
How we score charities +

The Clarity Score is a 100-point rating from UK Charity Commission data. Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10). A statutory inquiry sets the score to 0 automatically.

Full methodology →

Accountability & Transparency

Scored from filings

40 points — filing history (15), trustee oversight (15), declared policies (10).

Financial Health

Scored from filings

30 points — reserves (15), income stability (10), liabilities to assets (5).

Financial Efficiency

Scored from filings

20 points — program expense ratio (10), fundraising efficiency (10). Kept at 20% to avoid punishing legitimate infrastructure costs.

Community Support

Scored from filings

10 points — volunteer-to-staff ratio from Charity Commission workforce data.

Overall score

Sum of all pillar points. Translated to stars: 90–100 Exceptional (4★), 75–89 Good (3★), 60–74 Needs improvement (2★), below 60 Poor (1★).

Five-year trends

£0k £200k £400k £600k £800k 2021 2022 2023 2024 2025 Income 2021: £422k Spending 2021: £310k Cause spend 2021: £233k Income 2022: £293k Spending 2022: £262k Cause spend 2022: £197k Income 2023: £277k Spending 2023: £286k Cause spend 2023: £214k Income 2024: £692k Spending 2024: £321k Cause spend 2024: £246k Income 2025: £422k Spending 2025: £403k Cause spend 2025: £302k
  • Income
  • Spending
  • Cause spend

Values in £ thousands · Source: Charity Commission accounts

Key facts

Overall score
100/100 (4★)
Income
£422k
Cause spend
75% of expenditure
Reg number
1062595
Scope
UK-wide
Reserves
15 months
Trustees
10
Accounts year
2021
Filing
up to date

Similar disability charities

Top-rated peers by CharityCompare score

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Red flags

Frequently asked questions

Common questions about THE DYSTONIA SOCIETY's rating, finances, and Charity Commission status.

What is THE DYSTONIA SOCIETY's charity rating? +

THE DYSTONIA SOCIETY scores 100 out of 100 on CharityCompare (4 stars — Exceptional). The Clarity Score V1 sums four pillars from Charity Commission filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10).

Is THE DYSTONIA SOCIETY a good charity to donate to? +

THE DYSTONIA SOCIETY scores 100 out of 100 (4 stars — Exceptional) on CharityCompare's Clarity Score, our independent read of its Charity Commission filings. Around 75% of its spending goes to charitable activities and its accounts are up to date. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate.

Is THE DYSTONIA SOCIETY a legitimate UK charity? +

Yes — THE DYSTONIA SOCIETY is registered with the Charity Commission for England and Wales under registration number 1062595. You can verify the entry on the official register.

What is THE DYSTONIA SOCIETY's Charity Commission registration number? +

THE DYSTONIA SOCIETY's registration number is 1062595. Official register: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1062595

How much income does THE DYSTONIA SOCIETY receive? +

THE DYSTONIA SOCIETY reported £422k total income in its 2021 accounts, based on Charity Commission filings. Five-year trend: stable.

What percentage of THE DYSTONIA SOCIETY's spending goes to charitable activities? +

Approximately 75% of total expenditure went to charitable activities in the latest filed year. Fundraising was 8% and combined overhead (fundraising plus governance) was 9%.

Are THE DYSTONIA SOCIETY's accounts up to date? +

Filing status: up to date (last filing 2026-06-24 00:00:00.0000000). CharityCompare flags late or missing accounts separately from the financial score.

Where is THE DYSTONIA SOCIETY based? +

THE DYSTONIA SOCIETY is listed at London · UK-wide · SE1 7TP and operates UK-wide, focused on disability.

How does CharityCompare score THE DYSTONIA SOCIETY? +

We analyse Charity Commission annual accounts using three-year averages for program expense, fundraising efficiency, and overhead; working capital from reserves vs average expenditure; liabilities-to-assets from the latest balance sheet when available. Impact, leadership, and culture beacons are not yet assessed from public data alone. See our methodology for weights and thresholds.

Does CharityCompare recommend donating to THE DYSTONIA SOCIETY? +

No. CharityCompare provides independent scores and facts from official filings. We do not tell you where to donate or earn commission from charities.

How can I compare THE DYSTONIA SOCIETY with other charities? +

Use our free compare tool to put THE DYSTONIA SOCIETY side-by-side with other UK charities on scores, finances, and filing status.